I look and act like your average 20 something year old, you may not give me a second glance if our paths crossed in the street but taped to my tummy, unseen by the naked eye, I have a hidden disability.  Something that isn’t visible; something that unless you knew me personally, you would not know affects every part of my life. I know I’m not alone in this. There are many people, like myself who suffer with a chronic illness that cannot always be seen. By sharing my experiences here, I hope to reach out to others, to share an ‘I can’ attitude and to educate people on the different forms chronic health can take.

B is for Bladder is my own personal endeavour, my own passion project. This venture has been years in the making, gathering dust in the back of my mind whilst I’ve completed school and university at the same time as undergoing many surgeries and procedures. Recent health revelations have renewed my sense of urgency to get my blog ball rolling and the idea for change, to make a difference to people’s perceptions of chronic health has taken precedence.

So here it is, B is for Bladder – welcome to my world. 

latest blog posts

P is for products

As an SPC user for the best part of 10 years, I was thrilled to be asked to review ‘CATHDRESING’, a new product by JMBIOTECH. In our very first joint review, find out how myself and Corin got on with these daily dressings.

J IS FOR JUDGMENTS & JUSTIFICATIONS

I know writing this here now, there are no judging eyes but I can feel them, burning right through me. I can hear the judging mouths saying: ‘Well she’d washed and brushed her hair last night, so she must be fine.’

v is for the viney way

Sadly, most who have a chronic health condition will have had a doctor dismiss their reality at some time during their journey through the health system. Many have been told that their pain is all in their heads, or, like me, that if they, ‘just calm down’ then they’ll be able to wee.

l is for lockdown

People have been forced to abruptly change their routines, put their careers on hold and succumb to their freedom being taken away. I am a Fowler’s Syndrome sufferer and I have battled with change and a form of isolation for 10 years.

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